Interventional Study of Vosoritide for the Treatment of Children with Hypochondroplasia

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Trial Status Enrolling By Invitation

Trial Identifier

NCT06455059

Condition

Hypochondroplasia

The below information is taken directly from public registry websites such as ClinicalTrials.gov, EuClinicalTrials.eu, ISRCTN.com, etc. and has not been edited.

Trial Summary

The intent and design of this Phase 3 study is to assess vosoritide as a therapeutic option for the treatment of children with hypochondroplasia (HCH).

Eligibility Criteria

Birth Sex

All

Age

3 Years to 17 Years

Healthy Volunteers

No

Drug/Treatment:

Vosoritide, Placebo

Phase:

Phase 3

Study Type:

Interventional

Number of Participants:

80

Study Started:

2024-06-06

Study Updated:

2025-03-25

Trial Locations

  • Nemours Alfred I. DuPont Hospital for Children

    Wilmington, Delaware, United States

  • Children's National Medical Center

    Washington, District of Columbia, United States

  • Ann & Robert H. Lurie Children's Hospital of Chicago

    Chicago, Illinois, United States

  • Medical College of Wisconsin

    Milwaukee, Wisconsin, United States

  • Murdoch Children's Research Institute

    Parkville, Victoria, Australia

  • University of Alberta Stollery Children's Hospital

    Edmonton, Alberta, Canada

  • SickKids - The Hospital for Sick Children

    Toronto, Ontario, Canada

  • Centre Hospitalier Universitaire Sainte-Justine

    Montreal, Quebec, Canada

  • Hospices Civils de Lyon - Hopital Femme Mere Enfant

    Lyon, , France

  • Hopital de la Timone

    Marseille, , France

  • Hopital Necker-Enfants Malade

    Paris, , France

  • CHU de Toulouse

    Toulouse, , France

  • Uniklinik Koln

    Koln, , Germany

  • Univeristatskinderklinik Magdeburg

    Magdeburg, , Germany

  • Instituto Giannina Gaslini

    Genoa, , Italy

  • Fondazione Policlinico Universitario Agostino Gemelli IRCCS

    Rome, , Italy

  • Ospedale Pediatrico Bambino Gesu

    Rome, , Italy

  • Osaka University Hosptial

    Osaka, , Japan

  • Tokushima University Hospital

    Tokushima, , Japan

  • Institute of Science Tokyo Hospital

    Tokyo, , Japan

  • Tottori University Hospital

    Tottori, , Japan

  • Vithas Hospital San Jose

    Vitoria-Gasteiz, , Spain

  • Great Ormond Street Hospital for Children NHS Foundation Trust

    London, , United Kingdom

Inclusion Criteria

1. Participants must be ≥ 3 to < 18 years of age at enrollment 2. A confirmed genetic diagnosis of HCH 3. A height Z score of ≤ - 2.0 standard deviations (SDs) in reference to the general population of the same age and sex, as calculated using the Center for Disease Control and Prevention (CDC) growth charts 4. Males and females are eligible to participate in this clinical study. 5. Females ≥ 10 years old or who have begun menses must have a negative pregnancy test at the Screening Visit and be willing to have additional pregnancy tests during the study. 6. If sexually active, participants must be willing to use a highly effective method of contraception while participating in the study.

Exclusion Criteria

1. Short stature condition other than HCH
2. Have an unstable condition likely to require surgical intervention during the study.
3. Evidence of decreased growth velocity and/or growth plate closure
4. Taking any of the prohibited medications
5. Treated with growth hormone, insulin-like growth factor 1 (IGF-1), or anabolic steroids
6. Planned or expected to have limb-lengthening surgery during the study period.
7. Planned or expected bone-related surgery (ie, surgery involving disruption of bone cortex, excluding tooth extraction), during the study period
8. Require any investigational agent prior to completion of study period.
9. Received vosoritide or another investigational product or investigational medical device in the past
10. Have used any investigational product or investigational medical device for the treatment of HCH or short stature at any time, including vosoritide
11. Have current malignancy, history of malignancy, or currently under work-up for suspected malignancy.
12. Have known hypersensitivity to vosoritide or its excipients.
13. Concurrent disease or condition that, in the view of the investigator, would interfere with study participation or safety evaluations, for any reason

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